Public Health Genetics Week | Day 3

May 26, 2021
8:00pm Eastern Time
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Welcome

Join Maryland Public Television and partnering PBS stations across the country for day three of a multi-day film screening THE GENE: AN INTIMATE HISTORY, a documentary from Ken Burns and Barak Goodman. Tonight we will show hour three of the film and will discuss the topic of Public Health Genetics Programs.

The film screening is a collaboration between the National Coordinating Center for the Regional Genetics Network (NCC) and local PBS stations in celebration of Public Health Genetics Week (May 24-28). Partnering PBS Stations include Alabama Public Television, GPB, KLRN, MPT, South Florida PBS, WCTE, WETA, WQLN, WQPT and WXXI.

Public health genetics applies genetic and genomic information to improve public health and prevent disease. More information about Public Health Genetics Week and this series of interactive online screening events can be found at phgw.org/thegene.

Production funding for KEN BURNS PRESENTS THE GENE: AN INTIMATE HISTORY has been provided by Genentech, 23andMe, Cancer Treatment Centers of America, Alfred P. Sloan Foundation, Gray Foundation, American Society of Clinical Oncology (ASCO) & Conquer Cancer Foundation, Judy and Peter Blum Kovler Foundation, Craig and Susan McCaw Foundation, and the Corporation for Public Broadcasting. The Outreach and Education Partner is National Institutes of Health, National Human Genome Research Institute. Outreach support is provided by Foundation Medicine.

Video Descriptions

PHGW Day 3 Pre-Show Slides

PHGW Day 3

The Gene Film Screening - Hour 3

Hour 3 of THE GENE: AN INTIMATE HISTORY. The four-hour documentary brings vividly to life the story of today’s revolution in medical science through present-day tales of patients and doctors at the forefront of the search for genetic treatments, interwoven with a compelling history of the discoveries that made this possible and the ethical challenges raised by the ability to edit DNA.

Student Genetics Video Contest

Calling all students! Are you interested in science and genetics? Maryland Public Television wants you to submit a video explaining genetics concepts for a chance to win a school supply scholarship! Deadline June 15, 2021!

68min 15sec

Moderator

Panelists

  • Hannah Wand, MS, CGC

    Hannah Wand is a genetic counselor and program director of the Preventive Genomics effort at Stanford. She co-chairs the Public Health Genomics special interest group of the National Society of Genetic Counselors. Her work focuses on the dissemination of genetic services to improve population health and prevention of common diseases. She’s interested in public engagement with genetics to help guide equitable care.

  • Maximilian Muenke, MD, FACMG

    Recognized as a highly acclaimed physician-scientist and dedicated clinical and research mentor, Dr. Muenke brings more than three decades of experience to the ACMG, including 10 years on the faculty of the University of Pennsylvania School of Medicine. Since 2000, Dr. Muenke has served as Senior Investigator, Head of the Human Development Section, and Chief of the Medical Genetics Branch at the National Human Genome Research Institute (NHGRI) of the National Institutes of Health (NIH). He joined ACMG as CEO in October 2019.

  • Karen Volle

    Karen Volle is the Project Manager for the New England Regional Genetics Network (NERGN) at the Institute on Disability / University of New Hampshire (IOD/UNH). Ms. Volle has been with UNH since 2008. Prior to that Ms. Volle worked for roughly 20 years in the human services non-profit sector. She helped develop and run a program to assist the police in handling cases of child abuse/neglect and juvenile crime. Ms. Volle learned to look across systems as well as to manage day to day activities, and she now uses those skills with NERGN. Ms. Volle wears another hat as well, since she has a genetic condition in her own family. As one of seven Regional Genetic Networks funded by HRSA, NERGN’s goal is to improve access to quality genetic services through partnerships with families and family-led organizations, providers, public health and others. NERGN also aims to address health equity by connecting diverse communities with genetic services and other broad support.

  • Megan Lyon, MPH

    Megan Lyon is the Senior Program Manager of the National Coordinating Center for the Regional Genetics Networks (NCC). In this role, Ms. Lyon supports the RGNs and helps develop tools and resources that can be used by healthcare providers to help improve access to genetic services. Ms. Lyon received her Masters of Public Health (MPH) in Health Policy at The George Washington University.

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The views and opinions expressed in this online screening are those of the presenters and participants, and do not necessarily reflect the views or policies of ITVS, public broadcasting, or any entities hosting the screening.